CHanging practices in south Australia
Genetic counselors do an amazing job, helping families to understand what their child's diagnosis might mean for their lives. This message was sent to the Super Power Baby Project Facebook page:
I just wanted to write and tell you what has just happened at work with your book today. I work at clinical genetics in South Australia. I have been following your story for a while and got my book this morning. I took it to work and we have been reading over lunch. The reaction by one of the clinical geneticists was a little unexpected. I looked up and saw she was crying. She was just amazed and loved the aspect of positivity and was very overwhelmed by it. (in a good way!)
She has asked that we buy a copy for the work place now and the genetic counselors are talking about ways that we can change the way we talk to families to include a time where families can share their child's "super powers" as these things are just as important (to me probably more) as the medical information.
So overall - thank you. For a group who work with children like this everyday, you have showed us another side.
Clinical Genetics team, SA
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